Rare Bird
Advancing MEF2C Therapeutics
rare bird (noun):
an exceptional person or thing; a rarity
Rare Bird is a U.S.-based organization* dedicated to advancing and promulgating research that improves the understanding and development of therapeutics for MEF2C Haploinsufficiency Syndrome (MCHS), a rare neurodevelopmental disease that affects 350 children and young adults worldwide.
*non-profit status is pending
fundraising
Our team was the largest funder of MEF2C research last year.
We hope to break the record this year. Email us to join the effort!